I’m sitting in the airport waiting to board my flight and I feel so excited to get some rest and sister time in. I have never been away from my kids for this long but I know it will be really good for all of us. Yesterday was an exciting busy day. It started with one of my best friends and biggest supporters Jenna having shoulder surgery. She did really well despite the fact that she had a really unusual tear. The Dr said in the 10 years he’s been doing that surgery he’s never seen one like it but feels confident that they got a good repair. I was really glad that I got to be there for her as she has been by my side through my entire journey. She and I had lunch within hrs of hearing that something was desperately wrong with my body, she took me to my CT, let me stay with her before, after and during all of my treatments and procedures and was by my side every chance she had. She is a real gem and was so funny and brave through out it all.
While she was in surgery I went over to the chemo suit and had my port flushed. Every time I walk in there I feel very overwhelmed with emotion. I notice the people who have all their hair and you can tell are getting ready to “start” this journey. They are unsure of what to expect and some of them look defeated already but my favorite are the ones who look so determined. I only hope that fire and fight don’t fade as the effects get more and more uncomfortable. There are those of us with a variety of short hair styles anxiously waiting to see if we are maintaining those oh so important numbers and praying that we never have to go back to the beginning ever again. The hardest ones to see are those who are bald, quietly covering their bald bodies with fake eyelashes, painted on brows and the little scarves and hats that mostly keep your head warm and provide you a little security to feeling like people don’t know how you look under there. I wish there was a way for me to tell everyone how they can make a few lifestyle changes, whether they stay on chemo or not, that could dramatically affect the out come of their lives. It’s for that reason that I have decided that I WILL write a book to share my story. There are many details that I still need to work out about how I intend to go about it but last night I met with my uncle Marty’s girl friend who a published author and an English professor. She told me that she would be glad to help me and connect me with her publisher and other connections as I progress. I am very excited about where this will lead. I also met with another woman, who I met through facebook, to discuss our plan to start a cancer clothing line for people with scars, appliances and other medical “defects” A lot of exciting stuff to come. I am excited to start filling my thoughts with all of this new passion instead of cancer. Those days are coming. For now..off to Florida to welcome a new baby niece into the world and nurture a relationship with a sister :)
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I am so excited for you. Not only for your trip to Florida which seems to be so incredibly symbolic for you and your sister, but also that you are going to go through with the book. You are absolutely right about ovarian cancer being so incredibly overlooked and there are thousands of other young women going down a very similar road as you with little to no outlets of others to turn to that speak there “cancer language”. It really surprises me that ovarian cancer is so overshadowed. Especially by breast cancer. You would think they would work more hand in hand as far as funding/education/outreach goes. Especially when so many that have a story about one, also have a story about the other. You are here to inspire others and impact even more. I’m so proud of you can I can’t wait to see where the upcoming years takes us. You, my dear, are a blessing!
Hi,
My name is Debi Keshian. I found a short add w/ your website in the Boise Weekly Dirt: Downtown/Northend issue. Last January I was diagnoised w/ ovarian cancer. Dr. Perez did my second operation. I like he and Martha. I have two kids 10 & 13. I also have a wonderful positive husband that is going through this w/ me. I did two rounds of chemo and then stopped because of side effects – chemo sucks! I had my cancer for years before it was caught. My cancer is a rare cell type (granulosa cell tumor) it tends to grows slower than some of the other types but seems to come back more persistantly in the long run. I have my first scan next Tuesday. I am nervous about the scan because lately those vague symptoms have been getting stronger. I have met another lady (Sally) who is also an ovarian cancer patient and Dr. Perez client. I would love to meet more women w/ ovarian cancer in the Boise area. My home phone is 336-1573 give me a call if you are interested in forming a group or something. I feel like I need to do something to stop cancer and give back I got so much help during my surgeries and chemo. I also need some girl friends that understand all the complicated changes and emotions. Maybe we could start a book club or something? Hope your day is well.
Debi