We just got home from Hawaii and it was an amazing trip! We snorkeled, snuba’d, saw whales and dolphins and ate amazing fresh foods. Because of my anemia, lack of hair and weight loss I am always cold so it was so nice to feel warm for a while. The condo that Dr. Gardner donated was beautiful and sat right on the beach with many pools and activities. We can’t thank him enough for his generosity and all the others who did the fundraiser for our family trip. It was so great to not feel sick and be able to enjoy my kids and be active. I was still tired frequently but had much more energy than when I was in full blown chemo. I am so glad that the holistic stuff appears to be having some effect. I have been seeing Mark quite a bit and he has done urine samples, bloodwork and saliva testing and put together a very strict diet for me. It is very limited and difficult but I am trying! I can’t have any gluten grains, flour, sugar, vinegar, tomatoes, pork, milk etc… It makes life very difficult. I eat a lot of veggies, red potatoes and organic EVERYTHING if I can help it. It is very expensive but my cancer cell counts have dropped over 120 points in the last 5 weeks. This is better than the chemo has done alone and I am so grateful.
I had to go get ostomy supplies today and they are SO expensive. After a 20% discount they were still $230 for 10 wafers and 60 pouches. I’ll be lucky if they last me 3-4 weeks. Its days like this that I am so grateful for all the donors! Each time I go to the pharmacy or to get ostomy supplies I am so grateful that I don’t have to think this money is coming out of groceries or Christmas for my kids.
Speaking of Christmas I need to finish my shopping! I am hoping to go down with my friend Tina tomorrow and get it all finished up. Rilynn told Santa that she wants a violin and Mekaty wants reindeer horns. I don’t know that Aanta will be finding either of those :) I think he will find something that they will both like. Time to go unpack and put our summer stuff back in their boxes for a while…
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I’m so glad that you and your family had such a lovely time! Keep fighting…you’re beautiful and strong!
I think we’re all really glad to hear that the trip to Hawaii was all things positive for you. The new year is right around the corner and with it, hopefully, a revitalization of strength and support both from within and from those around you!
I am glad that you had a wonderful time. I pray for your family YOU WILL get better :)
I am soo happy that Hawaii was good for you and your family. It looks like everyone had a good time. I am crazy excited that the alternative medicines are working. That is amazing news. It is a bummer that the expense is up there, but if it is working, we will all continue to work as well! I AM SO IN YOUR CORNER sista!! Love you!
Crystal, I have been thinking about you a lot and have been wondering how you are doing. I am so glad that you and your family had a wonderful time in Hawaii. That is one of Dave and mines favorite places. I hope that you continue to have good progress. Have a VERY MERRY CHRISTMAS and we hope that the New Year has WONDERFUL things in store for you! Love Kathy and Dave Rainwater
Hi Crystal,
Wonderful to hear from you. You’re in our prayers daily sweetie. I’m so glad to hear you had a nice time in Hawaii. I love the family picture. You are a blessing to alot of people Crystal. God is using you in more ways than you can imagine. Look at all these people coming together for you… :) You are so beautiful. You will win, you already have really :) God bless you and your family. Have a really Merry Christmas!!! Love, Kathy (and all the people on our prayer chain praying for you)!